We’ve been home and resting, and man, does it feel good. One of the hardest parts of Josh being sick is when we are separated. During the week, Jack, Josh and I are the three amigos, but on the weekends, the four of us are inseparable.
I wish I could honestly say that it’s like nothing has happened and things are back to “normal.” But..they’re not. Each major hospitalization, it’s another hit for all of us, not just Josh.
Josh is as feisty as ever. He’s back to his vocal, demanding ways. I still have no idea if his tyrannical outbursts are because he’s 2 or if it’s his personality. Either way, we can’t help but giggle when he gets all tantrum-y.
Physically, he’s definitely wobbly and off-balanced. I hope he’ll be more balanced in coming days, once the medicine settles. He’s been playing with every single toy and wreaking havoc, as expected. He’s been kissing things: toys, my hand, himself and then giggles in the most mischievous way. Josh has low tone overall, including his mouth, but I noticed that his drooling is back. He doesn’t have enough muscle control in his mouth to keep the saliva from dripping and pooling in his bottom lip. This is something that his therapists have been working on, but I noticed that it may have regressed. In addition to healing overall, we now have the task of settling. As in, settling into “regular life” again.
If you remember the medical fiasco before this last one, Josh was overdosing on Dilantin. His levels were so toxic, they were about four times the amount they should have been. We don’t know how this happened exactly, but we’re hoping to investigate further so that no one else gets sick because of a careless error. More to come on that.
But in terms of medication, the neurologist on call gave us the prescription for tablets of the Dilantin so that we know that it’s measured properly. Tablets and a 2 year old equals hot mess. In the past 2 days, I’ve shoved this chewable tablet into pudding, cookies and bread. I have a feeling this tablet situation may be short-lived.
I haven’t talked much about Jack lately, but as you can imagine, all of (((THIS))) is a lot for a six year old. He’s always been a well-behaved, lovey boy, but understandably, he’s been affected by this emotionally. I’ve noticed him talking immaturely at times, and definitely acting out for attention.
Though these instances are small, we still acknowledge the behavior and reprimand him gently. I’m a toughie, but times like these call for harder hugs than tough love. On that note, I took Jack out on a special date where we enjoyed a night out, just the two of us. Having been apart for a few days, we sorely needed the mom and Jack time.
As I write this, I’m in the process of gearing up for my favorite time of year (professionally). It’s Toy Fair, where I’ll be heading to the city for the next 3 days to cover the latest and greatest for NKT. Jumping right back into work is what gives me clarity; my work is what keeps me sane. I need to write and I need to fulfill my passion and purpose. When I’m given this space to breathe and be @jenrab, I’m a much happier, healthier mama.